Financial Support
Genetic conditions, especially one like Noonan Syndrome with such a wide range of challenges and health implications, can put a strain on more than just your heart and stamina. It can have a significant financial impact. Both the federal and provincial governments have programmes in place to help. Not everyone qualifies but as completing the applications is a simply a matter of time and paper, it's worth serious consideration.
Government of Canada
Child Disability Benefit
Information (http://www.cra-arc.gc.ca/bnfts/dsblty-eng.html)
Child Disability Tax Certificate
T2201 Application Form (http://www.cra-arc.gc.ca/E/pbg/tf/t2201/README.html)
Government of Ontario
Special Services at Home
Information (http://www.mcss.gov.on.ca/mcss/english/pillars/developmental/programs/family_support.htm)
or RespiteServices.com - by region (http://www.respiteservices.com/Waterloo/index_e.aspx?ArticleID=341)
Application Form (http://www.mcss.gov.on.ca/mcss/english/resources/forms/ssah_app_form.htm)
Assistance for Children with Severe Disabilities
Information (http://www.respiteservices.com/Waterloo/index.aspx?ArticleID=340&lang=en-CA)
Passport Initiative
Information (http://www.cfcs.gov.on.ca/mcss/english/pillars/developmental/programs/young_leave_school)
Application Form (http://www.cfcs.gov.on.ca/mcss/english/resources/forms/passport_application.htm)
The Ontario Cleft Lip and Palate/
Craniofacial Dental Program
To assist families of children and young adults who must cope with the expense of treatment, the Ministry of Health and Long-Term Care established The Ontario Cleft Lip and Palate/ Craniofacial Dental Program. This program provides financial assistance for the specialized dental needs of affected individuals. (http://www.health.gov.on.ca/english/public/pub/child/cleft.html)
