She has Noonan Syndrome. She is still perfect.
Lauren has quite a list of characteristics. She looks a bit different and her heart has defects. Her growth is slow, her muscles have low tone and her joints are overly flexible. She has digestive issues, hearing problems, skeletal deformities and the potential for significant heart failure later on.
These complications, and more, are tied to Noonan Syndrome.
It’s a part of her, but it is not WHO she is.
She is Lauren and she is just perfect.
Living in Guelph, ON we are Robyn,
Kevin, Roman and Lauren. I (Robyn) spent many years in the advertising
industry managing the web department for a boutique firm in downtown Toronto.
Kevin is an audio engineer working on televisions shows like "Til
Debt Do Us Part". Roman, two years older than Lauren, is an amazing
big brother, now learning how to get his toys back without Lauren howling.
To get in touch, send us an email,
join the online
community or give us a call (519.341.8991). We'd love to hear from
you!
It is our intention that this site be an ongoing resource for people and parents whose lives are touched, influenced or absorbed by Noonan Syndrome. That it be the site we needed when Lauren’s syndrome was diagnosed.
We firmly believe Lauren has been given to us for a reason. If one person or family’s journey can be eased through our sharing of experiences then we are beginning to understand our purpose.